Xeroderma Pigmentosum

Self Help Clearinghouse

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Xeroderma Pigmentosum Society

International network. Founded 1995. Provides sharing of support, information and coping skills for families affected by xeroderma pigmentosum. Annual newsletter. Promotes research into finding a cure. Information and referrals, phone support, conferences, literature, advocacy in community, education and protection. Camp Sundown for patients of all ages and their families.
Write:
Xeroderma Pigmentosum Society
437 Snydertown Rd.
Craryville, NY 12521
Voice: 518-851-9490
Website: http://www.xps.org
Verified: 2/14/2013

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