Facial Disfigurement

Self Help Clearinghouse

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National. Founded 1991. Provides emotional support and information to persons with facial differences and their families. Network includes families who have similar concerns. Promotes public education and awareness. Also has cleftAdvocate program which provides online parent-patient support network. Newsletter, information and referrals.
P.O. Box 751112
Las Vegas, NV 89136
Voice: 1-888-486-1209 or 702-769-9264
Fax: 702-341-5351
Website: http://www.ameriface.org
E-Mail: info@ameriface.org
Verified: 2/18/2014

Apert International, Inc.

International. Provides support and information for those who have Apert Syndrome, a genetic craniofacial (and sometimes includes BIM(s)) defect. Website has listserv, chat-room, pen-pals and forum.
Apert International, Inc.
PO Box 2571
Columbia, SC 29202
Voice: 803-732-2372
Website: http://www.apert.org
E-Mail: info@apert-international.org
Verified: 2/19/2014

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