Batten Disease

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Batten Disease Support and Research Association

International. 12 affiliated groups. Founded 1987. Emotional support and information for families of persons with Batten disease, a rare, neurological condition. Promotes research, annual conference, literature, parent mentor program. Newsletter.
Write:
BDSRA
1175 Dublin Rd.
Columbus, OK 43215
Voice: 1-800-448-4570
Website: http://www.bdsra.org
E-Mail: bhetteberg@bdsra.org
Verified: 2/7/2014

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.